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Long-term health outcomes of people living with spina bifida

Centers for Disease Control - NCBDDD

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8

Funding
Estimated total program funding: $3,000,000
Category
Health & Medical
Status
OPEN
Deadline
10/27/2026

About

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB

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Notice-specific evidence check

What an applicant must verify for Long-term health outcomes of people living with spina bifida

Applicant evidence

  • Applicant type: Grants.gov eligibility code 00
  • Applicant type: Grants.gov eligibility code 01
  • Applicant type: Grants.gov eligibility code 02
  • Applicant type: Grants.gov eligibility code 04
  • Applicant type: Grants.gov eligibility code 05
  • Applicant type: Grants.gov eligibility code 06
  • Applicant type: Grants.gov eligibility code 07
  • Applicant type: Grants.gov eligibility code 12

Opportunity boundaries

  • Recorded funding: Estimated total program funding: $3,000,000
  • Recorded deadline: October 27, 2026; confirm time zone and submission system.
  • Recorded focus: HL
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